Debuted at Brighton Fringe, May 2019
A young rocketeer and a fallen star? A former dancer fighting bizarre illness and her bohemian roommate? A tortured captive and her rescuer? Lucy and Will must determine what story they are in, then dance the steps toward hope or acceptance in this imaginative, new drama based on a true story.
It’s been 25 years since I got that fateful tic(k) bite. I was 8. No one would know that it would alter the course of my life. In fact, it’s the reason I became who I am. After 19 years without a correct diagnosis, I found a doctor who did the right blood-work and asked the right questions. I started treatment for late stage, neurological Lyme disease the moment I returned home. (My doctor was 3 states away.)
Somehow, despite the illness, I managed to find myself in theatre. Now, 5+ years after I began treatment, I have decided to share that journey. Lyme is extremely isolating. Friendships are lost. The treatment and the disease cause pain and severe depression accompanies every moment. There was not a drama I could turn to- nothing, outside one documentary and internet support groups, where I could see someone representing the experience of Lyme.
This is why “The Beautiful Dance of Life & Death” was written. Now, it is time to show people that they are not alone. Their sister, daughter, or friend with strange and “unexplained” symptoms and behaviors are not crazy or making anything up. This is a piece of art I wish I had had in those tough moments of insane pain.
The show itself is an intimate piece. We will debut it at Brighton Fringe Festival in the U.K. with a preview reading in Kansas City before we leave.
Why England first? It started with the scale of their rural touring and some lovely friends who took me under their wing and mentored me into producing original content. It continued with me having done my freshman show about Lyme, which came out of the anger and the symptoms and social losses from the illness, called, “How to Walk Through Hell” at Brighton Fringe in 2017. While there, I learned that my physical symptoms improve being there. Maybe it’s the sea air, maybe sea level, maybe the lack of intense Kansas City weather changes (talking 40*F in hours), maybe it’s the afternoon teas… But, in all likelihood, it’s all the above.
I believe this story can save lives. People need help now. They need to see that they aren’t going crazy, they aren’t alone, and if they are not sick themselves, it is likely they already know someone with Lyme.
Staring Meredith Lindsey as Lucy and Connor Branson as Will.